The Down Syndrome Connection is passionate and dedicated to encouraging the unlimited potential in children and adults with Down syndrome throughout the San Francisco Bay Area since 1998. Our mission is to empower, inspire and support people with Down syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.
We pride ourselves on developing services that are in line with our members’ needs and continuously break down barriers to success by providing resources, technology and education through our direct services. Our Down Syndrome Education Alliance, Expression Connection and Communication Readiness Programs, as well as Peer Development Classes, Medical Outreach Alliance, public policy outreach, education advocacy, new parent outreach, support groups and more reflect the diverse needs of our members. |
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Teresa DeVincenzi |
Laura Gordon |
Marianne Iversen
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Michelle Slape |
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Elizabeth Lewis Director of Education elizabeth@dscba.org 925.362.8660 x106 |
Kshama Perera Development Director kshama@dscba.org 925.362.8660 |
Farhana Hasan Director of Finance and Operations farhana@dscba.org 925.362.8660 x101 |
Mike Lin |
I came to know the DSCBA when my wife and I had our first child – June – in 2017. As a family, we’ve had the opportunity to connect with so many wonderful families through the DSCBA and have benefitted from its amazing programs. Joining the DSCBA Board was an opportunity for me to serve and pay-it-forward – just as so many families and the DS community has done for us and our family. Today, my family and I (Suzanne, June and Oliver) live in Danville, CA – after having recently relocated back from Denver, CO. I join the board with 20+ years of experience helping companies design, develop and launch new products and experiences based on a deep understanding of people’s needs. I have done this in consumer products and services, health care, tech – for both for-profit and non-profit organizations. |
Jean Johnstone |
Jean has been involved with non-profit organizations since volunteering after school at 13 to help 4-6 year-olds with reading and crafts. She continued volunteering at several non-profits over the years while working at both for & non-profit organizations, including 17 years running her own marketing & promotions consulting firm working with the travel, entertainment, and wine industries. And her board affiliations have included organizations to empowered women, individuals with disabilities, and tourism associations. As Executive Director of the non-profit Xenophon Therapeutic Riding Center, providing equine therapy for children and adults with disabilities, Jean was aware of DSCBA and some of the benefits for the community. She was honored to be invited to join the Board and further impressed by the resources and opportunities for the community to connect, starting from the point of diagnosis. Not surprising, in her down time Jean enjoys the same industries she has worked with…travel, wine, storytelling, and new experience adventures! |
Steven Pugsley |
Our family moved to San Ramon in 2016. Soon after we arrived, we were introduced to the services of Down Syndrome Connection for our daughter, Jane (age 11). She absolutely loves going to “class” each Wednesday afternoon. We have been so impressed by the range of services and benefits this organization provides. I wanted to contribute to ensure its continued success.
I am a native Utahn with a love for the mountains, tennis, trail running, and road biking. I am a CPA and work as the Controller for Armanino Foods of Distinction.
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Erick Montgomery |
My family and I first learned of the DSCBA when our oldest child, Hudson, was born and diagnosed with Down Syndrome in 2014, in Walnut Creek, CA. With both the uncertainty of being new parents, along with all the unknowns of raising a child with special needs, my wife and I were grateful to be given the DSCBA information and reached out immediately. Since then, we’ve benefited from several of the organization’s many offerings: conferences, information sessions, walks, and music therapy sessions. Subsequently Hudson's two younger sisters have been able to join in and enjoy these activities as well! Being on this board allows me to give back and help ensure that this organization continues providing these valuable services to families. My personal goal is to support the organization's growth and its positive impact on individuals and families connected to Down Syndrome. Since 2006, I have worked in various roles related to Finance and Business Operations within Fortune 500 companies. Currently, I serve as the Head of Business Operations for the Adobe Technology Services organization in San Jose, CA, where I lead the BizOps Core, Partner, Transformation, and Strategy Ops teams. Leveraging my skills and knowledge of large, complex organizations, I aim to help DCSBA achieve and surpass its goals. My family and I are fortunate to have found this organization when my son was born, and I am both humbled and excited to contribute to its continued success. |
Frank Benavidez |
As a native of the East Bay, I am very grateful that my wife, Melissa and I have been able to raise our four kids here too. I have spent most of my career in various business operations roles with Dreyer’s Grand Ice Cream and Lam Research Corp during incredible periods of growth for both companies. I became aware of the DSCBA a few years ago through my wife’s involvement with fundraising events. Over the years I have been very impressed with the dedication of the staff and volunteers and the families that this great organization supports. I look forward now for the opportunity to contribute directly to DSCBA’s ongoing success and support of our community. |
Julie Sodestrom |
My husband, Dirk, and I came to be involved with the DSCBA in 1998 when our third son, Daniel, was born. With two boys, 8 & 10 yr. old, we were not new to parenting, but we were new to the world of Down syndrome. I attended the first anniversary meeting of this new organization called The Down Syndrome Connection with a deer-in-the-headlights look. They soon became our community where we made friends, got advice, got support and reassurances. I served on the Board in the early 2000’s and have enjoyed seeing the growth and success of the organization since it’s early beginnings. I look forward to seeing the Connection remain strong and be the same source of help and encouragement to many more new families in our future. I also serve on the Board of The Noll Foundation, which is a charitable foundation that focuses on providing grants to organizations that serve children: with disabilities, are financially needy or do research into childhood diseases. The DSCBA has been a long-time recipient of grants from the Noll Foundation. |
Clay Mauritson |
Born and raised in Healdsburg, Clay is part of the sixth generation of a grape-growing family. Pioneers from Sweden, they raised Merino sheep for the wool and planted their first vines on land they settled in 1868, an area that now anchors the Rockpile AVA.Clay graduated from Cardinal Newman High School in Santa Rosa, CA and headed off to the University of Oregon to play football and earn a degree. Two degrees and a couple of surgeries later, in 1997 Clay returned to Sonoma County, where he worked at Kenwood Vineyards, and later honed his skills alongside winemakers at Jordan Vineyards and Winery, Taft Street Winery and Dry Creek Vineyard. In 1998 he founded Mauritson Family Winery with the first vintage of Dry Creek Valley Zinfandel. Today, Mauritson Family Winery is one of the most respected wineries in Sonoma County. Clay and his wife, Carrie, live in Healdsburg with their three children: Brady, Davis, and Ella. Their oldest son Brady was diagnosed with Down syndrome in 2010. Clay was a founding board member of the DSANB (Down Syndrome Association North Bay) and started Project Zin, a successful fundraising event for the DSANB. Clay and his wife support a number of nonprofits that focus on making the world a better place for people with disabilities: the National Ability Center, the Emeril Lagasse Foundation, Higher Ground, and the Frankie Lemon School to name a few.Clay has served on numerous nonprofit and industry boards, including: Winegrowers of Dry Creek Valley, Rockpile Grape Growers Association, and the American AgCredit Nominating Committee. Clay is currently the President of the Sonoma County Vintners and a board member of the Sonoma County Vintners Foundation. |
Jonas (Kriks) Kriksciunus |
My wife and I have enjoyed the Bay Area for over ten years. We were introduced to the DSCBA in 2010 and were impressed with the leadership team. Our family has grown with the Connection and during this time we’ve had the privilege to meet and work with some of the best educators, service providers, and advocates. I have worked in Information Technology for the last 20 years and lead an IS team in San Francisco. I completed my degrees in Communications and Accounting in Northern California. As our family grows older, I hope to give back some of the guidance we were fortunate to get. I'm proud to be part of an organization focused on awareness and achieving the goals of academic and social success. |
Teresa DeVincenzi | Executive Director |
Teresa@dscba.org |
Laura Gordon | Director of Programs |
Lgordon@dscba.org |
Michelle Slape | Director of Family Support |
Michelle@dscba.org |
Marianne Iversen | Director of Mental Health & Aging Support |
Marianne@dscba.org |
Elizabeth Lewis | Director of Education |
Elizabeth@dscba.org |
Kshama Perera | Development Director |
Kshama@dscba.org |
Farhana Hasan | Director of Finance and Operations |
Farhana@dscba.org |
Lexi Ravarino | Volunteer Manager |
Lexi@dscba.org |
Laura Von Savoye | Communications and Social Media Manager |
Laura@dscba.org |
Melissa Benavidez | Events Manager | Melissa@dscba.org |
Lauren Amador | Program Manager |
Lauren@dscba.org
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Trang Le | Program & Operations Support |
Trang@dscba.org |
Augmentative Alternative Communication (AAC) | AAC@dscba.org | |
Communication Readiness Program (CRP) | CRP@dscba.org | |
Dual Diagnosis Support | ds-asd@dscba.org | |
Events | Events@dscba.org | |
Info | Info@dscba.org | |
Library | library@dscba.org | |
Medical Outreach | medicaloutreach@dscba.org | |
Membership Updates | Send us an updated contact information for your household | membershipupdates@dscba.org |
Music Therapy | musictherapy@dscba.org | |
New Member | For medical providers to email us about new families. | newmember@dscba.org |
Photo | Share your photos for DSCBA to use in our media | photo@dscba.org |
Programs Team | programs@dscba.org | |
Volunteer Team | volunteer@dscba.org |
Welcome to DSCBA’s new Advisory Board of professionals who are committed to being associated with and available to the DSCBA, and whose expertise has and will continue to be utilized by our staff to assist our members. Thank you for your commitment!
To empower, inspire and support people with Down Syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.